search results for:

Reagan Marie Neal

As a tiny infant born in 2008, Reagan Marie Neal began experiencing overwhelming effects from the brain damage she received during the birthing process. Because traditional medical techniques offered very little help for Reagan, her parents searched and searched until they found the therapy they believed was best for their baby daughter.

Unfortunately, because this therapy was not considered ‘traditional’, her parents were facing the challenge of paying thousands of dollars per year to help their daughter obtain the best quality of life possible. Friends, family, and strangers alike all rallied around Reagan and provided the funds and ...

Josiah Keys

Josiah was born with one of the few genetic forms of Arthrogryposis (also known as Escobar Syndrome) as was his older sister Mckenah. The odds of having more than one child with Escobar Syndrome, is around 1 in 800,000. Because of the nature of the syndrome, he has had to have surgeries when he was a month old which includes; a tracheotomy and having a g-tube put in. He was born with a floppy airway which caused his heart rate to drop and his oxygen level to drop. Because he aspirated as well, he had to have surgery to insert ...

Nevaeh Green

Nevaeh Rose Green was born on February 23, 2009. She was born 17 weeks premature and weighed a little over one pound. Nevaeh's lungs were not fully developed and she was put on a ventilator immediately. Medical professionals gave her a 10 percent chance of surviving the first night and a 20 percent chance of surviving the first week. She beat those odds, but remained in the NICU for 105 days. She had many complications during her hospital stay including an intraventricular hemorrhage (bleeding in the brain), seizures, periventricular leukomalacia (damaged brain tissue), retinopathy of ...

McKenah Keys

Mckenah was born with one of the few genetic forms of Arthrogryposis (there are many forms of Arthrogryposis), which is also known as Escobar Syndrome. She was not diagnosed until she was 2 years old. Originally the doctors tentatively diagnosed her with Trisomy 18, which is a terminal disease that has an average lifespan of 10-16 days. Mckenah has had numerous surgeries in Philadelphia, PA (which is a 5-6 hour drive from our home) that include; her feet, her knees, and her hips. She will require surgeries as often as her body grows and her tendons tighten. These kinds of ...

Allie Delp

Allie was born a healthy baby girl. She had her first seizure just days before turning 4 months old. It was a grandmal seizure that lasted several minutes and doctors believed it to be febrile. Within a few weeks she had 2 more seizure and was diagnosed with epilepsy and started on medication. Her seizures quickly increased in number and severity until she was having weekly seizures that averaged 25 minutes in length, her longest being an hour long. Shortly after starting medication Allie started having some difficulties gaining weight and eating. She ...

Lucas McCormick

This is Lucas Scott Mccormick. Lucas was born March 11,2010. He was born at 26 weeks premature just under 2 pounds. Due to a two vessel umbilical cord shutting off oxygen and nutrition supply. Lucas had to immediately be put on a ventilator due to his lungs not being fully developed. He had his PDA repaired (heart defect) inquinal hernias, and rop (retinopathy of prematurity) eye defect which corrected on its own. All other test throughout his 97 day Nicu stay came back normal. Intill the week before his dad and i took him home they did a routine brain ...

Kaylee Dunham

I am a 14 year old girl with cerebral palsy that affects me physically. I have a baclofen pump to help with my spasticity and dystonia. I am hearing impaired. I love being able to do things independently . I use a walker for short distances and a wheelchair for long distances!

Gabriel Dunmire

Gabriel was born just shy of 34 weeks gestation, he was born a fighter. Gabe spent 2 weeks in the NICU and 3 days in a step down unit. All of his life he battled developmental delays. For the longest time we thought it was all part of him being premature.

Around the age of 3 Gabe was diagnosed with autism spectrum disorder. We began attending therapies and wrap around services. He has been in autism services now for 5 years.

Gabriel was diagnosed with Neurofibromatosis(NF), August 2013. We all knew that the possibility ...

12