Lending Closet

Josiah Keys

Josiah was born with one of the few genetic forms of Arthrogryposis (also known as Escobar Syndrome) as was his older sister Mckenah. The odds of having more than one child with Escobar Syndrome, is around 1 in 800,000. Because of the nature of the syndrome, he has had to have surgeries when he was a month old which includes; a tracheotomy and having a g-tube put in. He was born with a floppy airway which caused his heart rate to drop and his oxygen level to drop. Because he aspirated as well, he had to have surgery to insert ...

McKenah Keys

Mckenah was born with one of the few genetic forms of Arthrogryposis (there are many forms of Arthrogryposis), which is also known as Escobar Syndrome. She was not diagnosed until she was 2 years old. Originally the doctors tentatively diagnosed her with Trisomy 18, which is a terminal disease that has an average lifespan of 10-16 days. Mckenah has had numerous surgeries in Philadelphia, PA (which is a 5-6 hour drive from our home) that include; her feet, her knees, and her hips. She will require surgeries as often as her body grows and her tendons tighten. These kinds of ...

Nevaeh Green

Nevaeh Rose Green was born on February 23, 2009. She was born 17 weeks premature and weighed a little over one pound. Nevaeh's lungs were not fully developed and she was put on a ventilator immediately. Medical professionals gave her a 10 percent chance of surviving the first night and a 20 percent chance of surviving the first week. She beat those odds, but remained in the NICU for 105 days. She had many complications during her hospital stay including an intraventricular hemorrhage (bleeding in the brain), seizures, periventricular leukomalacia (damaged brain tissue), retinopathy of ...

12