Mckenah was born with one of the few genetic forms of Arthrogryposis (there are many forms of Arthrogryposis), which is also known as Escobar Syndrome. She was not diagnosed until she was 2 years old. Originally the doctors tentatively diagnosed her with Trisomy 18, which is a terminal disease that has an average lifespan of 10-16 days. Mckenah has had numerous surgeries in Philadelphia, PA (which is a 5-6 hour drive from our home) that include; her feet, her knees, and her hips. She will require surgeries as often as her body grows and her tendons tighten. These kinds of surgeries will take place until her body is done growing. She wears braces on her feet to keep her feet from recessing back to the way they were before surgeries. Wearing these braces prohibits muscle growth in her calves because there are no hinges that allow any muscles to flex. Not having any muscles in your calves, forces your body to use other muscles, this wears her out. She has a long road ahead of her, but with God’s help she will continue to progress and move forward.
- What Makes Me Unique:
- Arthrogyposis (Escobar Syndrome)
- Contact Information: